unreal!

24 11 2009

Houston . . . I’m not sure we have a problem or not, but I’m sure as heck confused!  Today was my allergist appointment, where I got the long-awaited skin testing done.

I got there about ten minutes early, and ended up going in SIX minutes BEFORE my appointment time!  How’s that for awesome?

So, I go into this room thing with this nurse, who checks my BP and does spiro again.

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Check out my 143 over 84 blood pressure.  Why the heck is it high?!  That’s freaking weird.

Then I got to go sit in another office and stare at crap:

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Then the allergist came and talked to me for awhile, and even, surprisingly, dug into my early medical history (Doc quote: “Too much oxygen, eh?”.  Apparently!)  And, you know, once again told me that my spiro was pretty much normal (however, she was aware of last week’s pred course, and took that into account).

Then, she left and let the fun begin

 DSCF0800 DSCF0801

And, the results? Negative.  Every.  Single.  One.

Each jabby dot looked just like the one that they had jabbed with just saline.  AND I didn’t react to the histamine control solution either [they did it twice!!].

 

Seriously, if all my tests are coming back fine, WHY are my lungs such nuts sometimes?  Seriously, if they are going to be hyperactive, they could at least, you know, do it when I’m getting tested, or allow someone to hear them once in awhile!

The mysteries of life.  Now I get back to the lung doc in January who is, once again going to say “So, what are we going to do with you?” like he did last time.





remember my bio book?

23 11 2009

You know, that same one with the cute kitty on the cover?  And the one I’ve failed to break out since my last bio exam?  Um, oops.

Yeah, I gotta get crack-a-lackin’ that thing open again.  Two weeks TODAY till my second bio midterm!  However, at least it did not sneak up on me this time and I have two solid weeks of studying.

(And, you know, 120 pages to read in my textbook.  Or, about 17 pages a day for the next seven days.  That doesn’t sound TOO bad.)

 

Not much else to report.  Lungies are still being a little silly, but not too bad.  Finally got my Symbicort late this afternoon (was a little uncomfortable this morning, but I have no one else to blame but myself for that), and head for the allergist tomorrow at 2:00 pm, so I’ll update y’all on that appointment tomorrow.

Until then, I’m off to read about how cells harvest chemical energy!  ATP HOLLA!





plateau / dumb moves with asthma (part two)

22 11 2009

Since ending the prednisone yesterday, things have been a little rocky, but definitely more stable than last week, I think.  I felt REALLY good yesterday, to the point where it was weirding me out a bit—no complaints though!  I think I hit about 44 hours without using my rescue inhaler, which was awesome.

My peak flows have been chilling between 80-86% the last day or so, which I am cool with, and my last dip into the yellow zone was on Friday evening.  So, it kind of shocked me when my peak flows started trending downwards, and then plateaued.

11:29 am (yesterday) – 325 . . . 9:00 pm – 330, 1:15 am [today, when I finally went to bed] – 330[!!], 10:37 am – 310, 12:05 pm – 310, 4:30 pm – 310.

I started today pretty congested, which I don’t know what that’s about—this lingering cold, or allergies, or what.  Normally, I’d have gone for some Benadryl with how I was feeling this morning, but in anticipation of my allergy testing on Tuesday, Benadryl’s out.  I’ve also been experiencing some dyspnea today, which is the suck—GO AWAY!

 

So, what’s causing all this?  I definitely think the cold has a huge factor, as well as being done the prednisone.  I’m hoping I don’t do any sort of rebounding stuff!

 

EDIT [I wasn’t done this post, and now I have a bunch more stuff to add, so it’s like two posts in one!]

Tonight, I went to young adult worship at my friend’s church.

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It was awesome.  We were WILD.  And ALIVE in WORSHIP.  It was SO FREAKING GOOD.

And by wild, I mean jumping around, screaming, singing praise wild.  Christian mosh-pit wild.  It was INSANE.  And, once I got over the initial lung-bump, and coughing spasm, I felt AWESOME.

So, I got home.  And went into the bathroom to take my Symbicort . . .  And

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image

Yeah.  Fail.  So, you know, I did what anybody would do and attempted to suck some life out of the probably empty Turbuhaler . . . whilst in the yellow zone.  Why do I always do stupid stuff like this when my lungs are already at rocky points?!  I totally remembered YESTERDAY to refill my prescription, and DUH, forget to pick it up today.

 

Grrrrr!  STUPID.  My pharmacy is open until 10 PM, and in reality I COULD go pick it up, except for the fact that my dad said seventeen minutes ago he was going out in ten minutes . . . I could have been BACK from the pharmacy by now!  He also proceeded to YELL at me, which of course, did not end well, yelling at the frustrated girl with the crazy lungs who just finished a course of prednisone.  Grrr.

So, I’ll be going on my way to school, and hoping that the Symbicort maybe wasn’t as empty as I thought it was!





likes this

21 11 2009

Because Twitter lacks a “like” button similar to the one on Facebook, I often find myself tweeting @ replies to people that say “Kerri likes this”.  (And, no, Twitter . . . Favourites just doesn’t cut it!  It is one of my gripes with Twitter that I expressed to Danielle today).

However, if life had a Like button, I would have pressed Like a few times today.  And then a nice box would have come up that says “You like this”.

Here are things I would have pressed the life Like button on today:

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Vegetarian bacon!  That’s right, no meat, just soy!

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The delicious iced capp my mom bought me :)

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My gorgeous guitar . . . I played just random stuff for well over an hour.  It was amazing.

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Empty bottle of prednisone—I took my final 10 mg today.  Woohoo!

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87%!!!!!! It looks like 320, I guarantee it is 330. 

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How my peak flow log looks today.  Yes, I’m a loser and I store my peak flows on my iPod.

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Edmonton” by The Rural Alberta Advantage.

 

What did you Like today?





“don’t look now, but here comes that kid on steroids”

20 11 2009

I don’t know ‘bout you, but I’m full of steroids right now.  And, no, I am not buff ;) .

Last year in English, we had to write a comic.  One of our options was something that only a select group of people would find humorous.  I just found it in my “downloads” folder on my computer, so I thought I’d share it with y’all.  Note that I cannot draw.

steroids

My (non-asthmatic) friend actually came up with the caption, because I am un-hilarious, and I drew the crappy picture :) .

 

Okay, I don’t know if it was a stupid idea or not, but I divided my last 30 mg of prednisone into 20 mg [today], and 10 mg [tomorrow].  Taper-ish without enough pred to actually do a taper (ughhh).  I am not feeling the best right now, and that worries me a bit.  I flip flop between feeling good/off.  But, on a Friday night, there is not much I can do unless I think things are getting really bad, so I’m just going to hope things do go okay (of course, if I take a turn for the worse, I think y’all know where I’ll be headed . . .  I just hit up Google and found out that we in fact do have an urgent care clinic [on the other side of the city], but I am not feeling that is necessary yet, but will of course keep everybody posted . . .

Right now I’m feeling a little tight, but I seem to be moving air pretty good (in my opinion).  Peak flows are at 79-ish percent, which is not too bad, I guess, although I’d totally rather it be 84% like it was earlier.  Stupid confusing lungs.  Grrr.  I’m pretty sure that the fact that I am feeling this way still means that it is a lot to do with this cold, AND that the 30 mg/day probably wasn’t enough.  I see Dr. S on Thursday, and will definitely be bringing this up to her—more importantly, to my lung doc when I see him again.  I probably should have phoned his office this week with all that was going on, but I didn’t.  Sooo, I hope stuff starts improving . . . Boo yellow zone :( .

 

 

At about 4:30 this afternoon, my phone rang.  And I was totally surprised when I picked up and it was someone from the allergy clinic reminding me about my appointment on Tuesday!  Nobody EVER calls to remind me of appointments, they just expect me to remember on my own ;) .  I thought that was very cool of them.  (Also, I phoned MedReady to refill my Symbicort and had to listen to all kinds of “If you have the flu or flu-like symptoms, please send someone else in to pick up your prescription . . . I am getting sick of all this H1N1 talk, especially now that it is littering EVERYBODY’S Facebook!!  I know it needs to be taken seriously, but this is overkill. It’s all becoming a huge mess!).

 

I hope things are going more smoothly and less confusing for the rest of you!





e is for eyes and english

19 11 2009

I’ve made mention in the past that I have bad eyes.  Really bad eyes.  Since I was born so early, this is kind of unavoidable.  Also, I’ve heard that it’s attributed to the fact that I spent a lot of time on oxygen after I was born.  Necessary, but it still made my eyes worse.

I have what’s called “retinopathy of prematurity”, or ROP.  In simple terms ROP “occurs when abnormal blood vessels grow and spread throughout the retina, the tissue that lines the back of the eye. These abnormal blood vessels are fragile and can leak, scarring the retina and pulling it out of position. This causes a retinal detachment. Retinal detachment is the main cause of visual impairment and blindness in ROP” (NEI).  I don’t know what stages I have, but they are different in each eye.  I would guess that my left eye is probably about stage 4 or 5, and my right eye is about stage 3.

Essentially, my right eye is corrected a significant amount with glasses at a prescription of -18.  Oh, wait, what does THAT mean?  CNIB says a “nearsighted person who needs a –1.00 diopter lens can see objects at one metre clearly, but anything farther is blurred. Someone with a –2.00 diopter measurement requires a lens that is twice as powerful – so they can only see objects up to a 1/2 metre away clearly. A –3.00 lens would mean the person can only see a distance of up to 1/3 of a metre clearly, and so on. Most nearsighted people are in the range of -1.50 to -7.00 diopters, which is considered mild to moderate.” (source)

See how they stop at –7?  I’m way over double that.  My left eye prescription is simply written as “balance”.  In my left eye, I can see colours, lights and shadows, but not so much in the way of clear shapes, even with correction.  During eye exams, they tell me to read the words, and I’m like “blurrrrr”.  However, I’ve known nothing different my entire life.  So, this doesn’t bother me.  I’m also at increased risk for retinal detachment, which is why I regularly see the ophthalmologist (in whose office I sit with all the old people who are most likely seeing the retina specialist for diabetic retinopathy or various other things).

So, basically when I went to get my new glasses made [which are only 1 point stronger than my previous pair from four years ago], the guy said “If your prescription gets one point stronger, we have to send them out of the country to get made”.  Do you remember this day?  Yeah, that day.  He also said a bunch of stuff in regard to the frames I was choosing.  As if choosing frames is not hard enough, it is like getting an entirely new face, I had a bunch of constraints in order to make my glasses not look like crap.

So, yesterday, I went to pick them up. And my eyes bulged out of my head pretty much when I saw this:

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Yep, that is how thick my lenses are.  Scary, huh?  And definitely gives you a sense of how bad my eyes actually are.  Fortunately, when I wear them, the thickness is hidden by the sides for the most part.  Yiiikes.  And, even a millimetre difference in frame size totally mattered.  These were the pair of frames the special eye guy was trying to sway me away from, and I see why.  However, I have all $810 of them on my face now, and that is where they’ll stay for the next two years-ish.  It’s not as alarming when I’m actually wearing them, but even to me, who has lived with these eyes all my life, I am shocked.  Like, how are my eyes THIS BAD?  (Dear Baby Me: why did you make your mothering unit so sick?)

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I like ‘em. :)

 

The other E is for English.  Because I now understand why I hate the class so much!

I got a paper handed back today.  And I got another C+.  And, as my friend and I walked down the hall I exclaimed “How can he mark us on our opinion and interpretation on other people’s ideas?  Personal reflective interpretation is subjective and cannot be wrong!”.  And, I think that basically sums up WHY I hate English class so much.  And then I proceeded to be mad about it for the rest of our spare. 

Until I went to academic writing and two guys in my class peer edited my “Psychological Effects of Invisible Illness in Adolescence” paper and liked it :) .  AND they had both written about history!  (But, I liked their papers also).  We are an awesome bunch in my Academic Writing class, I must say.  I’ll be kind of sad when that class ends.  So, I am still mad about English, but at least the guys in my class liked my paper.  [One of them wrote on it “can’t find anything wrong”, because he told me that the content of the paper was interesting and distracting him from editing it :) ].

 

Also, on day 4/5 of the pred today [last dose tomorrow!].  I am coughing a lot less, and when I do cough it sounds more like my normal—yay!  I did get kind of SOB walking back from Tim Horton’s on my spare, and again after climbing the three flights of stairs to academic writing, but both bouts passed quickly and I was pretty much good to go again.  I also had a bit of trouble at my guitar lesson tonight [yiiikes].  My guitar teacher was sick last week when I was there, and he was like “You’ve got the cough, too!”.  He doesn’t know the half of it!!  So, I was trying to repress my cough (stupid, ya?) and in essence probably sounding worse.  Oops.

Peak flows are in the yellow still, so I’m hangin’ in there!  Earlier I had this brilliant idea called: “I am going to get a Slurpee”.  Except for even though I got one without caffeine, my tummy did not like that much, and it got mad at me for it.  And, the rest of the Slurpee is in my freezer, probably to be saved until I am off “the evil candy”, or until it gets thrown out.

I also bought various other candy that is now sitting in my room until further notice.  Like a freaking REESE PEANUT BUTTER BAR.  Seriously, who even knew those existed?!  I didn’t!  Once again,not to be eaten until I know it will not make me feel icky :) .





i hate the yellow zone

18 11 2009

Back in the day, Steve wrote a post called “The Yellow Zone . . . In Detail”.  And I keep thinking back to certain things he writes in it.  And, I am alike.  I HATE the yellow zone.  However, I am very fortunate that usually I don’t spend too much time there.

The last few days, though, I’ve been hanging in the yellow zone A LOT.  These are my peak flows for the last four days [before that, I wasn’t even bothering to fight with my meter for it to give me results].

Here’s the bigger picture of the last four days.  I’ve been checking my peak flow a LOT because of that 66% that I didn’t feel (which understandably freaked me out a bit).

i hate the yellow zone

pf chart nov

The yellow zone is a stupid place, and for me, it’s any of those numbers between 195 and 304.  I’ve done all I can do myself with what I’ve got at home.  I don’t feel tight or short of breath.  I cough, but mostly when I am moving.  When I’m stationary, I feel mostly fine, save for the coughing, which is annoying, likely more for others than for myself.

But, my peak flows?  They FREAKING SUCK.  And this is why I am indecisive whether to call my lung doc or not.  I know I am in the yellow because I am sick.  That’s normal.  What’s not normal is how I seem to be STUCK in the yellow, even if I take Ventoin.  If I actually FELT bad, I would call my doctor right away.  But, there’s my problem.  My peak flows suck, I’m coughing, but mostly I just feel fine!  And usually when I am in the yellow zone I can actually FEEL IT.

So, I’m kind of at a loss.  I have an appointment with Dr. S next Thursday, although nothing will get resolved there [except for the fact that I’ll get another course of pred prescribed to have on hand, as long as more of my other meds].  And, allergy testing next Tuesday.

I was also supposed to work 3:30-5:30 today, but called in sick.  I didn’t explain the whole pred thing, what with double-edged immune suppressing-ness and the possibility of me making the kids sick, or the kids making me sicker.  I’d be really sad about having to call in, but I get to work all next Friday, so I am cool with that [as long as I am better, which I’d better be!!]

On the brighter side, I am not having any icky pred tummy symptoms, which is good.  I am down with that.  I just hope the darn stuff starts doing something soon, as I’m 40.5 hours in!





snack time :) / my ziploc

17 11 2009

Snack time always reminds me of childhood—that lovely designated part of the day that was devoted to eating random stuff that your mom or dad packed for you to hold you through until lunch/after school/when you got home from daycare [well, I guess most daycares provide snackage for their kids.  Mine does.  By which I mean the one I both attended as a child, and the one I work at.]

Except for, my mom no longer packs me snacks.  So, the foray into prednisone land [which, so far is not so bad because I have been given tips from all of you lovely people—cut to segway of “Go read Danielle’s Surviving Prednisone post right now, because it is full of all sorts of awesome advice] has had me thinking of what kind of snacks I am going to be eating every couple hours to keep any sort of nausea at bay, which I began experiencing this morning.  Also, D’s post got me to go to Shoppers Drug Mart after English and buy some antacids.  [And then I got sucked into buying cute little containers of Tums BECAUSE THEY WERE ON SALE as well as little rolls, AND orange Vitamin Water.  I need to control my impulsive spending.  Because all of that was NOT necessary].

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Um, yeah.  Cocoa and Creme Tums are freaking delicious.  While we’re at it, I may as well show you all the stuff in my portable pharmacy now [aka Ziploc].

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That’s right.  Halls berry Breezers [that I never end up taking], Benadryl, an AeroChamber, peak flow meter [which I never end up using when I’m not at home, so I kind of don’t know why i bothered throwing it in this morning], Tums Smoothies [Cocoa and Creme], pred, Symbicort [don’t know why that’s in there either], berry Tums, Advil, Halls Defense with Vitamin C, Chapstick with the label falling off, extra Ventolin [in addition to the one in my pocket], and a dog tag [once again, not sure why the dog tag is in this bag.]

. . . As my bio prof would say “I digress”.

Back to snacks.

My biggest issue is portability, because the first several hours of my day are spent at school.  I had an apple-berry granola bar before English [8:30], Cheerios at 10:45, and another apple-berry granola bar on the bus at 12:45 on my way home.  And yes, I am food-bored already.

So, what are your favourite snacks?  [While on pred or otherwise]  Share ‘em below!  [This means you, Steve, if you see this before jetting off to Pittsburgh :) .  We talk snacks often.]

As for me, it’s time to dig into my cupboard and find yet another snack!





first course of prednisone

16 11 2009

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I hold in my hand a 76% peak flow and 30 mg of what Steve calls “The Evil Candy”.

Said pred is now in my stomach.  There’s no going back now . . .

In your face, lungs.  Prednisone, do your stuff on the lungs, take it easy on the rest of my body, please.

 

Also, i want to thank Morgan for holding me accountable and encouraging me to do what I need to do.  You rock.

I’ll keep ya’ll updated.





procrastinating prednisone?

16 11 2009

I’ve gotten to the point with this cold that I am seriously contemplating the pred—not a place where I like to be.  I’m up to 4 puffs of Symbicort twice daily, so I can go no further with that, and am STILL doing the Ventolin every four hours scheduled.  But, things are not getting WORSE, they are just not getting better. 

I coughed up a bunch of stuff this morning which was definitely gross and not fun, but I felt better after it for sure.

Peak flows have been fluctuating annoyingly—this morning I was at 82%, and then had said gross coughing spasm in the bathroom and decided to check my peak flow again after getting ready for school.  76%.  Um, hello?  Dropping seven percent in under ten minutes is not my idea of a good time.  So, i took my Symbicort and my Ventolin and headed to school.

So . . .  I’m still procrastinating the pred.  ‘Cause I don’t feel bad enough [or at the current moment, bad at all aside from coughing], to justify starting it.  [Ughh, there’s my asthmatic overanalyzing again, eh?]

I’ll keep y’all posted . . .